Hi there,
So I decided for 2011 I want to write a blog post at least twice a week to remind me that even though I have bad days, I have awesome days too. So here is a little about me to start things off...
I'm 28 and living in Wellington, and when I was 15 I first got really sick due to Glandular Fever (Mono to Americans). This lasted for about six months and annoyed me no end because of the fact I was highly involved in Marching and yet when I went to practise it tired me out.
Now to add to that since I was born I have had an intolerance to Dairy products, & have had reflux because of it. Which I only started having to take medication for since I was 18/19. I also got diagnosed with Asthma too.
When I was 16 my bestfriend went missing over New Years and was found two weeks later murdered. That was pretty hard to deal with but thanks to counselling & support at school etc I did pretty well and got through the last two years of school.
At 21 I had to have Breast Reduction surgery because my back was getting damaged due to them. Scariest thing to go through major surgery when your family are at the other end of the country. I was also diagnosed with Gilberts Syndrome, and yet since I was 16 we just thought i was still having affects from Glandular Fever as i was still tired for several days after a day being really busy etc, but GS is now what they have diagnosed.
Gilberts Syndrome (GS), A major characteristic is Jaundice, caused by elevated levels of unconjugated bilirubin in the bloodstream. More on Gilberts here
I had a rough year at 21 as I also had my tonsils taken out two months after the breast reduction. Though the hospital did apologise for not taking them out when I was younger as they had caused so many problems.
For a few years healthwise I did really well. In fact it was only occasionally I would nap during the day or have no energy. It wasn't till I got to 26 and had a major upset in my life that things went down hill again.
My flatmates partner at the time committed suicide in our house & I had to call for help etc. I had to help her so never thought about myself but a few weeks later I ended up collapsing and had no energy etc. Went to the Doctor who told me I needed to rest & now started diagnosing the fact I have severe stress & anxiety disorder and that she thinks I have Chronic Fatigue syndrome. But to me it just seemed like Gilberts was just reminding me It was still there as all the symptoms the doctor was saying was CFS is the same for Gilberts. So I was put on the Invalids with WINZ and ordered to not go back to work till they said so.
The middle of 2010 I moved to Wellington, so started with a new doctor who has been great and is even trying to help me figure out why certain foods are making me sick as well. Although we are still a lil concerned as its mainly products with Gluten that are affecting me and yet the tests he did for Coeliac's came back negative so will have more tests to go.
Just before Christmas I had to have 7 teeth removed due to the effects of the reflux eating away my enamel on my teeth :( but the upside meant I am no longer having dental pain which i have suffered from since 2008.
So now its 2011, and I am about to start counselling FINALLY! for the stress & anxiety which they have said could be post-traumatic stress due to going through my friend being murdered and then having my flatmates partner do the same thing. I really hope the counselling helps thats for sure.
I still have my bad days where I barely have the energy to get out of bed and where I can just be reading a book and have no energy but I am determined to make the most of it all. Life is what we make it and I want to remember even though I have these really bad days due to Gilberts and I seem to have food allergies they cant figure out etc yet, I can achieve anything!
I will not let Gilberts Syndrome rule my life and make things difficult, I accept that I have it but I also know I have Goals to achieve and I am determined to achieve them!
So this is my 2011 Blog to jot down inspiring quotes, Life & anything else. I hope I don't bore you with it too much :)
Marie
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