So Its taken me all week to blog this week, but I have been full on and even have some pretty good news.
I saw the doctor on Wednesday, and the doctors pretty happy with my health at the moment apart from my iron levels. so now they are going to do more blood tests and might have to increase my iron intake. He has also given me calcium tablets to take.
Hes pretty happy though that things are looking ok so will just have check-ups though to keep an eye on it all :)
My Crazy life and all that is in it.... (I write because its something to get all the words out that I cant seem to say thanks to my Big Sister for giving me the guts to do so no matter what)
Friday, January 28, 2011
Thursday, January 20, 2011
what a day..
So today I woke up feeling a lil off, nothing unusual when I have not been sleeping properly etc.
But i felt good as I got things done this morning only to fall asleep on the couch with the cat at lunchtime.
So I guess yesterdays walk around the city and excursion into porirua wore me out more then usual. Which is strange as its not like i was doing anything out of the ordinary but I guess the stress from other things I am having to deal with is part of the reason everything is wearing me out so easily.
I finally managed to go for a walk this evening around 8pm which was nice but due to the blisters from my new shoes I did not manage to go too far. but it was nice to head out for a lil while in fresh air.
I have been reminding myself all day that what doesnt kill me makes me stronger so hopefully it really is true & Hopefully tomorrow will be a better day on all fronts and I might get some answers I need on some other matters :)
But i felt good as I got things done this morning only to fall asleep on the couch with the cat at lunchtime.
So I guess yesterdays walk around the city and excursion into porirua wore me out more then usual. Which is strange as its not like i was doing anything out of the ordinary but I guess the stress from other things I am having to deal with is part of the reason everything is wearing me out so easily.
I finally managed to go for a walk this evening around 8pm which was nice but due to the blisters from my new shoes I did not manage to go too far. but it was nice to head out for a lil while in fresh air.
I have been reminding myself all day that what doesnt kill me makes me stronger so hopefully it really is true & Hopefully tomorrow will be a better day on all fronts and I might get some answers I need on some other matters :)
Friday, January 14, 2011
Sitting here dreaming...
Afternoon All ☺
Didn't have so much of a restful sleep last night as woke up a couple of times with pins and needles in my right arm... (Haven't had that happen in just about 8months which is why even though everyone has said get it checked out I havent lol) If It carries on again I guess I will have to mention it to the doc.
Anyways this morning I felt pretty exhausted so took it easy, and luckily the kitten went back to sleep on the couch beside me so I managed to relax and just watch a lil cruddy tv & catch up reading emails etc.
This afternoon, I have washed dishes started folding washing and stripping my bed before starting to feel a lil sleepy and loosing concentration (although the concentration thing is no doubt related to ADHD) lol.. so I have dinner on already so I wont need to stress about it later and can take the rest of the afternoon/evening slowly.
I had planned on doing some craft related stuff but I think I might just wait till tomorrow to do so, so might spend the evening reading. I've been slowly plodding along with Nalini Singh's Psy-Changeling series which I am totally hooked on!
Reading has always been something no matter how sick etc I have been is where I can escape and just enjoy things ☺
any who i may be back later to update who knows...
Didn't have so much of a restful sleep last night as woke up a couple of times with pins and needles in my right arm... (Haven't had that happen in just about 8months which is why even though everyone has said get it checked out I havent lol) If It carries on again I guess I will have to mention it to the doc.
Anyways this morning I felt pretty exhausted so took it easy, and luckily the kitten went back to sleep on the couch beside me so I managed to relax and just watch a lil cruddy tv & catch up reading emails etc.
This afternoon, I have washed dishes started folding washing and stripping my bed before starting to feel a lil sleepy and loosing concentration (although the concentration thing is no doubt related to ADHD) lol.. so I have dinner on already so I wont need to stress about it later and can take the rest of the afternoon/evening slowly.
I had planned on doing some craft related stuff but I think I might just wait till tomorrow to do so, so might spend the evening reading. I've been slowly plodding along with Nalini Singh's Psy-Changeling series which I am totally hooked on!
Reading has always been something no matter how sick etc I have been is where I can escape and just enjoy things ☺
any who i may be back later to update who knows...
Thursday, January 13, 2011
positive but sleepy...
Hey All ☺
Well today I had great plans to get quite a few crafty bits done and dusted but that's not what ended up happening sadly.
I woke up this morning to find my ankle, I took a tumble on yesterday (happens quite a lot as I have no fluid in my ankle joints or knee joints) was slightly swollen and very black & blue & ached like crazy. I also slept in till just about 10am.. not sure why as I didn't stay up late last night either, so obviously my body decided I just needed some extra sleep & rest. I'm normally up by 8am at the latest.
I did a bit of reading this morning & then watched an episode of Dr Oz as he was doing an episode on Coeliac's & Gluten sensitivities. This is something I felt I really needed to watch while we are still trying to find out whats wrong with me when it comes to some foods. We have done the Blood Tests for Coeliacs but it came back clear and yet when I eat products with Gluten in them I end up throwing up or them going straight through me along with cramping and a lot of pain. It was interesting to learn a lot of people go through that and yet are told they have nothing wrong with them. So it sounds like I might have a sensitivity to Gluten, which goes well with the fact I cant have lactose either lol.
I managed a small walk (no run today) down to the dairy and claimed my free Ice Block which I was grateful for as it was quite hot this afternoon, although since getting back I have struggled to keep my eyes open since.
So it has not been very productive but Im wondering if my body is just reminding me some days I need to have a slow day and rest. I have been go go go the past week because I was feeling so good.
Tomorrow will be a better day that I am sure of. ☺
I also set myself another little goal today over the next 3 months I want to work on my Photography Portfolio and do a new one since my old one was destroyed sadly...
Anyways I am going to head off for an early night (its only 9.50pm here but im still struggling to keep my eyes open).
Spotted this pic online and it made me smile so thought I would share it here :)
Well today I had great plans to get quite a few crafty bits done and dusted but that's not what ended up happening sadly.
I woke up this morning to find my ankle, I took a tumble on yesterday (happens quite a lot as I have no fluid in my ankle joints or knee joints) was slightly swollen and very black & blue & ached like crazy. I also slept in till just about 10am.. not sure why as I didn't stay up late last night either, so obviously my body decided I just needed some extra sleep & rest. I'm normally up by 8am at the latest.
I did a bit of reading this morning & then watched an episode of Dr Oz as he was doing an episode on Coeliac's & Gluten sensitivities. This is something I felt I really needed to watch while we are still trying to find out whats wrong with me when it comes to some foods. We have done the Blood Tests for Coeliacs but it came back clear and yet when I eat products with Gluten in them I end up throwing up or them going straight through me along with cramping and a lot of pain. It was interesting to learn a lot of people go through that and yet are told they have nothing wrong with them. So it sounds like I might have a sensitivity to Gluten, which goes well with the fact I cant have lactose either lol.
I managed a small walk (no run today) down to the dairy and claimed my free Ice Block which I was grateful for as it was quite hot this afternoon, although since getting back I have struggled to keep my eyes open since.
So it has not been very productive but Im wondering if my body is just reminding me some days I need to have a slow day and rest. I have been go go go the past week because I was feeling so good.
Tomorrow will be a better day that I am sure of. ☺
I also set myself another little goal today over the next 3 months I want to work on my Photography Portfolio and do a new one since my old one was destroyed sadly...
Anyways I am going to head off for an early night (its only 9.50pm here but im still struggling to keep my eyes open).
Spotted this pic online and it made me smile so thought I would share it here :)
Tuesday, January 11, 2011
Slowly but surely...
This week was a bit of a slow start, as was a lil tired after the busy week last week. Now its Wednesday & I've managed two walks today. The down side being I did not sleep much last night, not sure why but I guess its just GS reminding me it can keep me awake at times ☺
We've had some amazing weather the past few days here in Wellington & while I was in Alicetown. I even walked to Petone & back on the Sunday Night, which was really nice. I had a couple of Spa's under the stars which was beautiful & very relaxing. It also helped tire me out a lot too so I slept really well while there.
The start of the week has been a lil busy but in a good way as I have been finishing a Swap I have been taking part in via the Craftster website. Along with working on some other crafts which I will be selling ☺
Not much else to say at the moment but I will leave you with a quote that has been stuck in my mind all day.... after the girls at Life is Bewleyful posted it the other day.
We've had some amazing weather the past few days here in Wellington & while I was in Alicetown. I even walked to Petone & back on the Sunday Night, which was really nice. I had a couple of Spa's under the stars which was beautiful & very relaxing. It also helped tire me out a lot too so I slept really well while there.
The start of the week has been a lil busy but in a good way as I have been finishing a Swap I have been taking part in via the Craftster website. Along with working on some other crafts which I will be selling ☺
Not much else to say at the moment but I will leave you with a quote that has been stuck in my mind all day.... after the girls at Life is Bewleyful posted it the other day.
"You were born as an original. Don't die as a copy." ~ Unknown
Sunday, January 2, 2011
Couple of quotes
That have been in my head all day so thought I would share them....
"There is only one thing that makes a dream impossible to achieve: the fear of failure.” The Alchemist by Paulo Coelho
"We have control over 3 things in our life-The thoughts we think, the images we visualize & the actions we take. This becomes our outcome."
"There is only one thing that makes a dream impossible to achieve: the fear of failure.” The Alchemist by Paulo Coelho
"We have control over 3 things in our life-The thoughts we think, the images we visualize & the actions we take. This becomes our outcome."
Saturday, January 1, 2011
A Lil about me to start 2011 off...
Hi there,
So I decided for 2011 I want to write a blog post at least twice a week to remind me that even though I have bad days, I have awesome days too. So here is a little about me to start things off...
I'm 28 and living in Wellington, and when I was 15 I first got really sick due to Glandular Fever (Mono to Americans). This lasted for about six months and annoyed me no end because of the fact I was highly involved in Marching and yet when I went to practise it tired me out.
Now to add to that since I was born I have had an intolerance to Dairy products, & have had reflux because of it. Which I only started having to take medication for since I was 18/19. I also got diagnosed with Asthma too.
When I was 16 my bestfriend went missing over New Years and was found two weeks later murdered. That was pretty hard to deal with but thanks to counselling & support at school etc I did pretty well and got through the last two years of school.
At 21 I had to have Breast Reduction surgery because my back was getting damaged due to them. Scariest thing to go through major surgery when your family are at the other end of the country. I was also diagnosed with Gilberts Syndrome, and yet since I was 16 we just thought i was still having affects from Glandular Fever as i was still tired for several days after a day being really busy etc, but GS is now what they have diagnosed.
Gilberts Syndrome (GS), A major characteristic is Jaundice, caused by elevated levels of unconjugated bilirubin in the bloodstream. More on Gilberts here
I had a rough year at 21 as I also had my tonsils taken out two months after the breast reduction. Though the hospital did apologise for not taking them out when I was younger as they had caused so many problems.
For a few years healthwise I did really well. In fact it was only occasionally I would nap during the day or have no energy. It wasn't till I got to 26 and had a major upset in my life that things went down hill again.
My flatmates partner at the time committed suicide in our house & I had to call for help etc. I had to help her so never thought about myself but a few weeks later I ended up collapsing and had no energy etc. Went to the Doctor who told me I needed to rest & now started diagnosing the fact I have severe stress & anxiety disorder and that she thinks I have Chronic Fatigue syndrome. But to me it just seemed like Gilberts was just reminding me It was still there as all the symptoms the doctor was saying was CFS is the same for Gilberts. So I was put on the Invalids with WINZ and ordered to not go back to work till they said so.
The middle of 2010 I moved to Wellington, so started with a new doctor who has been great and is even trying to help me figure out why certain foods are making me sick as well. Although we are still a lil concerned as its mainly products with Gluten that are affecting me and yet the tests he did for Coeliac's came back negative so will have more tests to go.
Just before Christmas I had to have 7 teeth removed due to the effects of the reflux eating away my enamel on my teeth :( but the upside meant I am no longer having dental pain which i have suffered from since 2008.
So now its 2011, and I am about to start counselling FINALLY! for the stress & anxiety which they have said could be post-traumatic stress due to going through my friend being murdered and then having my flatmates partner do the same thing. I really hope the counselling helps thats for sure.
I still have my bad days where I barely have the energy to get out of bed and where I can just be reading a book and have no energy but I am determined to make the most of it all. Life is what we make it and I want to remember even though I have these really bad days due to Gilberts and I seem to have food allergies they cant figure out etc yet, I can achieve anything!
I will not let Gilberts Syndrome rule my life and make things difficult, I accept that I have it but I also know I have Goals to achieve and I am determined to achieve them!
So this is my 2011 Blog to jot down inspiring quotes, Life & anything else. I hope I don't bore you with it too much :)
Marie
So I decided for 2011 I want to write a blog post at least twice a week to remind me that even though I have bad days, I have awesome days too. So here is a little about me to start things off...
I'm 28 and living in Wellington, and when I was 15 I first got really sick due to Glandular Fever (Mono to Americans). This lasted for about six months and annoyed me no end because of the fact I was highly involved in Marching and yet when I went to practise it tired me out.
Now to add to that since I was born I have had an intolerance to Dairy products, & have had reflux because of it. Which I only started having to take medication for since I was 18/19. I also got diagnosed with Asthma too.
When I was 16 my bestfriend went missing over New Years and was found two weeks later murdered. That was pretty hard to deal with but thanks to counselling & support at school etc I did pretty well and got through the last two years of school.
At 21 I had to have Breast Reduction surgery because my back was getting damaged due to them. Scariest thing to go through major surgery when your family are at the other end of the country. I was also diagnosed with Gilberts Syndrome, and yet since I was 16 we just thought i was still having affects from Glandular Fever as i was still tired for several days after a day being really busy etc, but GS is now what they have diagnosed.
Gilberts Syndrome (GS), A major characteristic is Jaundice, caused by elevated levels of unconjugated bilirubin in the bloodstream. More on Gilberts here
I had a rough year at 21 as I also had my tonsils taken out two months after the breast reduction. Though the hospital did apologise for not taking them out when I was younger as they had caused so many problems.
For a few years healthwise I did really well. In fact it was only occasionally I would nap during the day or have no energy. It wasn't till I got to 26 and had a major upset in my life that things went down hill again.
My flatmates partner at the time committed suicide in our house & I had to call for help etc. I had to help her so never thought about myself but a few weeks later I ended up collapsing and had no energy etc. Went to the Doctor who told me I needed to rest & now started diagnosing the fact I have severe stress & anxiety disorder and that she thinks I have Chronic Fatigue syndrome. But to me it just seemed like Gilberts was just reminding me It was still there as all the symptoms the doctor was saying was CFS is the same for Gilberts. So I was put on the Invalids with WINZ and ordered to not go back to work till they said so.
The middle of 2010 I moved to Wellington, so started with a new doctor who has been great and is even trying to help me figure out why certain foods are making me sick as well. Although we are still a lil concerned as its mainly products with Gluten that are affecting me and yet the tests he did for Coeliac's came back negative so will have more tests to go.
Just before Christmas I had to have 7 teeth removed due to the effects of the reflux eating away my enamel on my teeth :( but the upside meant I am no longer having dental pain which i have suffered from since 2008.
So now its 2011, and I am about to start counselling FINALLY! for the stress & anxiety which they have said could be post-traumatic stress due to going through my friend being murdered and then having my flatmates partner do the same thing. I really hope the counselling helps thats for sure.
I still have my bad days where I barely have the energy to get out of bed and where I can just be reading a book and have no energy but I am determined to make the most of it all. Life is what we make it and I want to remember even though I have these really bad days due to Gilberts and I seem to have food allergies they cant figure out etc yet, I can achieve anything!
I will not let Gilberts Syndrome rule my life and make things difficult, I accept that I have it but I also know I have Goals to achieve and I am determined to achieve them!
So this is my 2011 Blog to jot down inspiring quotes, Life & anything else. I hope I don't bore you with it too much :)
Marie
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